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Post by Lynnea on May 9, 2011 22:46:40 GMT -5
So this news might be a shock but it wont effect this message board, really...just ACCAA as a whole.
Here is a copy of the Facebook message I sent out. _________________________
Well everyone,
I gave people a month to contact me, and while some did I didnt get enough follow up about the fundraisers. So for now...I heartbreakingly inform the members of this group that absolutely no updated news will be added from me to this group, or the website until further notice.
Once funding for ACCAA happens I will be able to continue work with ACCAA. Until then there is nothing I can do. This also means until I receive the help needed there is nothing that I can do. I'm sorry about this but I'm being honest. I dont want to shut ACCAA down completely because the good that has happened through ACCAA outweighs the difficulty we've run into. So right now I'm stopping all updates. You all can still converse on the website/facebook group/message board and you are all welcome to message me and keep in contact, but nothing new about ACCAA will be going on until we are able to raise funds.
I hope that everyone understands, that I really don't want to do this but I've been forced to due to the situation that ACCAA has entered.
God bless you all and I hope that we keep in touch. Feel free to visit the website for the information thats on there right now. I do want everyone to know that I'm not angry about this, it just breaks my heart. All that I am doing is stating the facts. -Lynnea
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Post by larry on Sept 23, 2011 19:32:39 GMT -5
Just came on. What's with the NODCC.com website? Maybe there are too many ACC forums and blogspots! Can"t surf them all. Grandson (12) with C-ACC or AgACC. Explosive outbursts but don't think he has had any seizures. Some time ago I read something about psrtial complex seizures on the temporal lobe. Any ifo? Also, are enlarged ventricles always mean hydrocephalus? Does mild ventriclomegaly mean no fluid build up or a non-progressive condition?
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