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Post by ehart on Sept 14, 2009 14:15:24 GMT -5
My son Logan (P-ACC) is going through re-evaluation for therapies due to falling behind again in language and processing skills. He had to have his hearing tested and although he passed the OAE test (the one with the sensors in the ears to test ear function), he could not do the other test. Every time the nurse put the ear phones on him, Logan just grinned. He would raise his hand when the nurse said to, but could not/would not raise it when he heard the noise in the ear phones. I know he can hear fine, but this has raised the question of the nerve health causing the processing delays. He now has to be evaluated to be sure that the nerves are functioning appropriately that take the info from the ear to the brain. His Dr. has recommended an ABR or behavioral testing. He will be doing the behavioral testing in a couple weeks, and depending on results will have the ABR in 1 1/2 months.
Has anyone else had similar situations with their child and have you heard of nerve issues being linked to ACC? I appreciate any knowledge I can gain on this.
-Erin
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Post by matthewsmom on Sept 14, 2009 20:58:34 GMT -5
ehart... Welcome to the Message Board. My son, Matthew, has had two Auditory Brainstem Response (ABR) tests. They were both done when he was a baby/toddler to rule out hearing loss. I was told by Matthew's audiologist that he needs extra time to process during a hearing test in the soundproof booth. I don't have specific experience with what your child, Logan, is dealing with in terms of possible processing delays but I can tell you that in another ACC e-mail group that I belong to there are parents who have discussed this topic. I also went into the ACC-Listserv archives and read several posts from parents regarding auditory processing delays and specific hearing tests, behavior tests., etc. One parent did mention that her child who has ACC was diagnosed with central auditory processing disorder. If you are interested, you can send a note to the ACC Listserv yourself or I would be happy to copy the note you posted here and send it (on your behalf-with your permission) to the ACC Listserv e-mail group and then send you all responses received from other parents who have gone through what you are dealing with now. ACC-Listserv e-mail support group: lists.maine.edu/cgi/wa?SUBED1=acc-l&A=1 Sandie *Mom to 15 year old Matthew with complete ACC in Oregon* |
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Post by ehart on Sept 15, 2009 12:06:19 GMT -5
Sandie-
Thank you so much for your response. I am slowly finding the different web sites for parents with kids that have cc disorders. I will check out the list serve site that you mentioned. I think Logan probably just needs extra time to process what he is hearing. I know that all information gained helps, especially when planning his therapies.
-Erin (mom to Logan, p-acc)
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Post by matthewsmom on Sept 18, 2009 19:06:19 GMT -5
Erin (ehart), You're welcome. There is definitely a big plus in networking with other parents who have a child with ACC and gaining their insight. I hope that Logan will receive all the therapies that will benefit him and that you will be able to better understand exactly what is causing Logan the difficulty with hearing/processing.  Sandie *Mom to 15 year old Matthew with complete ACC* |
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Post by ehart on Sept 22, 2009 20:57:02 GMT -5
An update: I was able to contact a pediatric audiologist and she agreed to test Logan with a behavioral-type hearing test....and great news, he passed. So now Logan does not need the ABR, which is good. However, it means the processing difficulties are probably related to the P-ACC and that means more therapy and lots more practice.
I'm learning that being an advocate for my child can be time consuming, but also rewarding when something clicks right b/c of my perseverance. Thanks for the support!
-Erin
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Post by matthewsmom on Sept 24, 2009 16:35:03 GMT -5
Erin... Thank you for sharing such great news about Logan and his recent hearing/behavior testing. Receiving answers helps so much and allows us to make better and more informed decisions with respect to what our child needs. I can attest to the time consuming process of being a strong advocate for your child and I agree with you that it is worth every bit of time and work you put into it when you reap the rewards that happen as a result of that time and effort spent. Great news for you and Logan. Sandie *Mom to 15 year old Matthew with complete ACC* |
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