GREAT NEWS CONCERNING ACCA

[Lynnea]

Hey everyone first of all I wanted to thank you for being so involved with ACCA. And secondly if you have a child with ACC and want your child in the new video I'm making you have until tomorrow evening to send me the pictures. If I dont get them by tomorrow evening I wont be able to put your child in the video. Once again the name of your child will not be in the video for privancy purposes. It will just be the picture. So please get those sent in if you havent yet.

The news that I have is awesome. I just had a meeting about ACCA and in this meeting the name was changed to ACCA Association or ACCAA. It was just easier to have the name changed to this though it's not a huge change. ACCAA is now a non-profit corporation and so we are very excited about that! We're waiting on papers to come back about that but other than that it's official so join me in excitement as ACCAA continues to grow! More and more people are learning about the disorder as well as the corporation and I received nothing but good news. The leaders/officers that are helping me with the corporation and I are going to be hard at work.

Please continue to spread word about the Golf tournament coming up next month as well as getting more people to sign the petition the number of signatures is growing daily now lets get it to 1000 and more! I need your help with that. www.petitiononline.com/ACCA2009/petition.html

God Bless you all
-Lynnea

[matthewsmom]

Lynnea,

THAT is such great news.

CONGRATULATIONS that ACCAA is now an official non-profit corporation.

I am also very excited about this news and for you and the board members of ACCAA.

I am going to make a post right now in the ACC-Listserv regarding the detailed information for the upcoming Golf Tournament fundraiser for ACCAA so that the many people within that e-mail group will become aware of this upcoming event.

Sandie *Mom to 15 year old Matthew with complete ACC*

[aracelibriesmom]

Hey Lynnea,

Its Araceli mommy to 23 month old Brianna with Complete ACC... I had sent you a few pics of Brianna that you were welcomed to use for the new video. Not sure if you remember we corresponded for a little via email my address is [e-mail] I would love to have Brianna be part of this video, its an honor If you dont have them I will attach one to this message let me know if you can copy it.

Regarding the new name ACCAA I kind of like it

About the first golf tournament in Maine unfortunately it is way too far for us to attend we are in California.

I am looking forward to next years DCC conference being held in California, Barbara from NODCC and Sandie have informed me of this and I cant wait.

Araceli,

Mommy to Brianna baby girl with C-ACC and tons of iffy stuff but over all BEAUTIFUL!

[aracelibriesmom]

I forgot to add the picture here it is, or should I email it to you?

Attachments:

[Lynnea]

thanks for the picture I have it saved. I usually like to have them e-mailed so that I can e-mail the person back but I'll be posting the link and all that on here so this is fine too It'll be all over all the ACCAA stuff as soon as I get the video done! Thank you again. I'm so excited about getting the video done

[aracelibriesmom]

I can see that, I am super excited too! kiss

[Lynnea]

Hey all so the video is done I'm about to upload it to the VIDEOS section on this part of the board!

[matthewsmom]

Lynnea,

I just watched the new ACC Kids Video and it's beautiful.

Sandie