Post by matthewsmom on Jul 4, 2009 19:24:39 GMT -5
Please use this thread to post any helpful and informative websites about Agenesis of the Corpus Callosum or a corpus callosum disorder that you have found useful.
Post by matthewsmom on Jul 4, 2009 19:42:41 GMT -5
Below you will find websites with information pertaining to Agenesis of the Corpus Callosum:
The ACC Network:
The ACC Network was the first place I discovered when my son was diagnosed with agenesis of the corpus callosum as a baby. They are wonderful! The co-founders of the ACC Network are Gary and Kathy Schilmoeller. They have two sons and one of their sons who is grown now has ACC and is high functioning. I had the pleasure of meeting all of them at an ACC Conference. They are very nice people.
The ACC Network recently announced in their "Callosal Connection" newsletter and also in their ACC-Listserv e-mail support group that they have made the choice to end the ACC Network due to funding. The ACC Network has informed me, however, that they still plan to continue the ACC-Listserv e-mail support group and they are updating their webpage to reflect the new changes.
The ACC Network will no longer be mailing out packets of information in the mail about Agenesis of the Corpus Callosum or writing their newsletter called "Callosal Connection"
ACC-Angels Around the World: family web pages of kids with ACC, adults with ACC and a variety of information about agenesis of the corpus callosum: scenicbeauty.tripod.com/AngelsAroundTheWorld.html
Agenesis of the corpus callosum: genetic, developmental and functional aspects of connectivity: (a Review written by Lynn K. Paul, Warren S. Brown, Elliott H. Sherr, M.D. and several others) www.emotion.caltech.edu/agcc/AgCC.nrn2107.pdf
Considerations For Educators Of Students With ACC This page is written by Mr. McCallum a teacher who has worked with an ACC child in his classroom. He offers detailed and valuable information. The web page version is no longer available. If you would like to receive a copy of this document through e-mail written by Mr. McCallum please E-Mail me: hope@aracnet.com He wrote the following line which I feel is the best possible way to begin to educate any child...
"Finding a student?s learning style is key for the educating of that child."
I think I have vistited at least half of these sites! You are so very helpful Sandie.