worried mum,baby to have MRI

[yasmin25]

Hi everyone,

My name is Yasmin I have a 14month old little boy called Malachy. I stumbled across this message board whilst researching agensis of the corpus callosum. Malachy recently had a CT scan in the hospital because he bumped his head and it was more of a do it 'just incase' scenario. I wasn't expecting the outcome which was the doctor saying that he would have to have a MRI scan at a later date, the words that followed were alien to me and everything was such a blur but I remember her saying that it was something to do with the corpus callosum my mum remembers her saying it was something about the shape of his CC but then in the morning the doc said they couldn't see the connection between the left and right hemispheres of the brain. They did make a point of saying that there was no certainty in this as the CT scan is not the correct scan to diagnose this and to wait till he had a MRI. This will be next week.

Malachy seems to of developed absolutely fine he has been sitting up un-aided since 8 months, rolling round like a lunatic since around that age to. He began Crawling at 11months and in the past month has learnt to pull himself up and stand (leaning on to something). He is also began talking at 8months, first word Dada! (why do they also say dada first!) he can now say a handful of words dada, mama, dog, whats that?, hiya. He waves bye bye, blows kisses, claps hands, dances when music is on. in the past couple of days he has managed to climb onto the sofa.

Any advice or reassurance from people who know more about this would be so appreciated. I am out my mind with worry and am now wishing he would never had the CT scan. Please please give me your thoughts,

regards,

Yasmin xx

[matthewsmom]

Dear Yasmin,

My son, Matthew, was diagnosed with agenesis of the corpus callosum when he was four months old. I still remember the day he was diagnosed as if it was yesterday even though 17 years have gone by. It is overwhelming and that is putting it mildly.

My heart goes out to you with the worry you are going through after having received the news of ACC from your child, Malachy's, recent CT scan.

My son was diagnosed with ACC by a CT scan when he was four months old. An MRI is able to give a much more detailed picture of the brain and my son had an MRI (much later) after his CT scan.

I can absolutely understand your feelings of wishing that the CT scan wasn't ever done.

There are actually a lot of kids and adults who have ACC (who are developing very well) who find out the very same way that you are finding out with Malachy. Some kids end up at the Emergency Room after having hit their head and it shows up on the CT scan or MRI and the doctors are amazed that the child is functioning 'normally'. Some adults go in for an MRI due to migraines or for sinus surgery, etc and that is how they find out they have ACC.

It is wonderful that Malachy is developing on a typical timeline and meeting milestones. He's doing midline activities and using his hands together at midline, crawling, pulling to stand, saying words and more. That is very, very encouraging.

There is a very broad range of effects for agenesis of the corpus callosum, ranging from mild learning disabilities to being profoundly physically and mentally challenged and anywhere in between.

Please know that there are a lot of kids who have ACC who do very well. They may be a little slow on meeting some of their milestones (or may not). A lot of kids who have ACC need some help in school (resource room or special education) but do attend mainstream classes.

The website below will explain in more detail about ACC from the beginning and includes support groups, family web pages and other information.

Agenesis of the Corpus Callosum-Angels Around The World:
scenicbeauty.tripod.com/AngelsAroundTheWorld.html

If you have any questions or would like to talk more, please e-mail me anytime: Sandie e-mail: [e-mail]

or you can leave a message here on the board. I am happy to help and please feel free to e-mail me as often you want with any questions that come to mind or anything that is on your mind.


Sandie *Mom to 17 year old Matthew with ACC in Oregon*

Jan 6, 2011 12:23:14 GMT -5 yasmin25 said:

Hi everyone,

My name is Yasmin I have a 14month old little boy called Malachy. I stumbled across this message board whilst researching agensis of the corpus callosum. Malachy recently had a CT scan in the hospital because he bumped his head and it was more of a do it 'just incase' scenario. I wasn't expecting the outcome which was the doctor saying that he would have to have a MRI scan at a later date, the words that followed were alien to me and everything was such a blur but I remember her saying that it was something to do with the corpus callosum my mum remembers her saying it was something about the shape of his CC but then in the morning the doc said they couldn't see the connection between the left and right hemispheres of the brain. They did make a point of saying that there was no certainty in this as the CT scan is not the correct scan to diagnose this and to wait till he had a MRI. This will be next week.

Malachy seems to of developed absolutely fine he has been sitting up un-aided since 8 months, rolling round like a lunatic since around that age to. He began Crawling at 11months and in the past month has learnt to pull himself up and stand (leaning on to something). He is also began talking at 8months, first word Dada! (why do they also say dada first!) he can now say a handful of words dada, mama, dog, whats that?, hiya. He waves bye bye, blows kisses, claps hands, dances when music is on. in the past couple of days he has managed to climb onto the sofa.

Any advice or reassurance from people who know more about this would be so appreciated. I am out my mind with worry and am now wishing he would never had the CT scan. Please please give me your thoughts,

regards,

Yasmin xx