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Post by matthewsmom on Aug 10, 2009 21:57:39 GMT -5
Please use this thread to post any inspirational poems or stories that have a special place in your heart.
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Post by matthewsmom on Aug 10, 2009 22:03:48 GMT -5
A child is........ A butterfly in the wind, Some can fly higher than others; but each one flies the best it can. Why compare one against the other? Each one is different! Each one is special! Each one is beautiful! Author unknown
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Post by acmunchkin on Aug 13, 2009 16:37:55 GMT -5
One of my friends who is also a special needs mommy sent this to me and I LOVED it!!
Bill of Rights for Parents of Kids with Special Needs By: Ellen
We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare of our families, do ordain and establish this Bill of Rights. * We have the right to expect our kids to be seen for who they are as individuals, not as labels or diagnoses. * We have a right to trust our instincts about our kids and realize that experts don't always know best. * We have a right to ignore the remarks, questions and stares and not give explanations or excuses for why our children are the way they are. * We have a right to choose alternative therapies for our kids. * We have a right to roll our eyes straight out of our heads when we encounter certain mothers who brag nonstop that their kids are the smartest students/best athletes ever. * We have a right to wonder “What if…” every so often. * We have a right to play aimlessly with our children. Not for therapeutic or educational purposes—just for fun. * We have a right to blast Bruce Springsteen/Tom Petty/Any Rocker, down a glass of Pinot Grigio, get a pedicure, go out with the girls or do all of the aforementioned at once if that's what it takes to avoid burnout. * We have a right to react to people’s ignorance in whatever way we feel necessary. * We have a right to not always have our child be the poster child for his/her disability and some days be just a child. * We have a right to go through the grieving process and realize we may never quite be "over it." * We have the right to give our kids chores. Even better if they can learn to make breakfast in bed for us. * We have a right to stretch the truth when we fail to do the exercises the therapist asked us to do this week because we were too darn tired or overwhelmed. * We have a right to have yet more Pinot Grigio. * We have a right to fire any doctor or therapist who's negative, unsupportive or who generally says suck-y things. * We have a right to tell family and friends that everything may not be OK—at least not how they mean it, anyway. * We have a right to hope for an empty playground so we don’t have to look into another child’s eyes and answer the question, “What’s wrong with him?” * We have a right to bawl on the way back from the playground, the birthday party, the mall or anyplace where our children’s challenges become glaringly obvious in the face of all the other kids doing their typical-development things. * We have the right to give our children consequences for their behavior. They may be “special” but they can still be a royal pain in the butt. * We have a right to take a break from Googling therapies, procedures, medicine and treatments for our kids to research upcoming concerts, exotic teas or anything not related to our children’s disabilities. * We have a right to talk about how great our kids are when people don’t get it. * We have the right to not always behave as inspirational icons who never complain or gripe about the sometimes awful realities of raising a child with special needs. * We have a right to expect quality services for our children not just when they’re infants, preschoolers and elementary school age, but when they’re in older grades and adults, too. * We have a right to adequate funding for those services and to not have to kick, scream or endure a wait for them. * We have a right to get tired of people saying, as they give that sympathy stare, "I don't know how you do it." * We have a right to wish that sometimes things could be easier. * We have a right to cheer like crazy anytime our children amaze us—or weep like lunatics. * We have a right to push, push and push some more to make sure our children are treated fairly by the world.
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Post by aracelibriesmom on Aug 13, 2009 19:07:45 GMT -5
ok I am crying my butt off now... I agreed with this Bill of Rights for parents of kids with special needs! it was beautiful
May I copy it and send it as an email to all my friends and family? I would love to share this. I have a friend (actually a customer from my work who has now become a friend) in Michigan with a little girl with downs sydnrome I would love to share it with her.
Thanks
Araceli
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Post by acmunchkin on Aug 13, 2009 19:34:09 GMT -5
Sure...send to whoever needs it. I didn't write it....but I am guessing that it was written to be passed around.
I cried also!!
Have an awesome night!
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Post by aracelibriesmom on Aug 13, 2009 19:35:06 GMT -5
thanks, good night!
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Post by lauras on Sept 7, 2009 14:12:53 GMT -5
There is alot of versions of this poem out. Heres one:
If I had my life to live over, I'd try to make more mistakes next time. I would relax. I would limber up. I would be sillier than I have on this trip. I would be crazier. I would be less hygienic. I would take more chances, I would take more trips. I would climb more mountains, swim more rivers, and watch more sunsets. I would burn more gasoline. I would eat more ice cream and less beans. I would have more actual troubles and fewer imaginary ones. You see, I am one of those people who lives prophylactically and sensibly and sanely, hour after hour, day after day.
Oh, I have had my moments And if I had it to do over again, I'd have more of them. In fact, I'd try to have nothing else. Just moments,one after another. Instead of living so many years ahead each day. I have been one of those people who never go anywhere without a thermometer, a hot water bottle, a gargle, a raincoat, and a parachute.
If I had to do it over again, I would go places and do things. I'd travel lighter than I have. If I had my life to live over, I would start barefooted earlier in the spring and stay that way later in the fall. I would play hooky more. I wouldn't make such good grades except by accident. I would ride on merry-go-rounds.
I'd pick more daisies!
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Post by aracelibriesmom on Sept 10, 2009 12:10:02 GMT -5
Thats a nice poem lauras
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Post by ehart on Sept 15, 2009 12:59:27 GMT -5
acmunchkin- Thanks for sharing the Bill of Rights...I love it! I'm going to post on the frig. and read it often, it fits so well with what I've been feeling lately. -ehart
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lindas
getting to know you
Posts: 58
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Post by lindas on Jan 20, 2014 0:47:16 GMT -5
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