Prayer Requests

[matthewsmom]

Please use this thread to post any prayer requests you may
have...and know that there are others here who will be praying
for you.

And be sure to post an update when you receive an answer to
prayer. It's always wonderful to see the amazing ways in which
God works.

[aracelibriesmom]

Hello everyone,
Brianna and my family need your prayers... please.

Brianna has been super fuzzy and runing fevers for the last three days and breathing weird, so I made an appointment with her pulmonary doctor to check her out.

So yesterday we went in as a routine check up with pulmonary, her pulmonary doctor really is sweet and has been seeing her since she was 5 months old. She then suggested we do another sleep study (polysomnography) since she hasnt had one done in over 8 months to see how her sleep apnea is doing if it has increased and how much worse it has gotten, to get a clear picture of why Brianna was struggling to breathe.

She then moved on to checking her throat and nose, and she said Briannas tonsils continue to get bigger and that we will need to do surgery to remove her tonsils and adenoids ( this will be her fourth surgery and shes only 23 months )
She was seen by an ENT ear nose and throat specialist a while back and he said this surgery might be needed in the long run I tried to put it aside and tried to not think of the future, now the future is here. The doctor said her airways are half the size of a normal child due to a malformality of her airways and her facial structure so they feel that removing her tonsils and adenoids is a must. They are also not sure if this will be enough to stop her lungs from deteriorating, every time she said her lungs are worse than before I cried and cried... you never want to hear that your child is worse...

She said that we will do the sleep study in about two weeks, then after we have a graphic picture of how much her central/obstructive sleep apnea has increased we will send that to the ENT specialist as proof that she needs to have this surgery. After she has this surgery they will repeat the sleep study 2-3 months later. If this shows to have helped enough to open up her airways then we will just continue with her normal treatment, BUT... if this does not show a big enough change and her airways are still constricted to were she is working so hard to breathe they want to do a trachestomy (trach tube/Breathing tube) surgically inserted into her throat... and this we cannot do I cant accept it.

They have talked about doing the trach tube many times and her dad and I have blown it off, yelled at them NO WAY and wouldnt hear it. Yesterday I was playing the role of a strong mommy, and I talked about the pros and cons about it because I wanted to be informed and educated as to how it would improve her quality of life or...?

It was hard enough for me to schedule her eye surgery she is STILL pending because I refused to put her through a fourth surgery (which she will still need to have within the next 6-12 months because her left eye muscle is too weak and she can lose her sight in that eye if we dont do it). Now its hard for me to accept another surgery on this fragile baby for her tonsils and adenoid removal but something I cannot do is accept my child to have a trach put in, I cant see her like that it hurts so bad.

She was also noted to have gone down from 19.7lbs to 17.13lbs due to her struggling to breath its like if she was running a mile every night and she is physically working hard to breath so shes losing weight due to this also... there is so much that I dont know how to explain it all.

My husband Angel, older daughter Hailey, my entire family and myself ask for you to help us pray for Brianna. Please pray that the surgery for her tonsil and adenoid removal will be enough to open her airways enough that she will not need a trach please... I will keep you updated on how her sleep study goes, when her surgery for the tonsil and adenoid removal is scheduled and ask for prayers that her surgery goes well. I will keep you posted for her second sleep study and the results.

Brianna has had two major surgeries on her stomach (intestinal malrotation and fondoplication for GERD severe reflux) and one minor for a g-tube placement in her stomach. Brianna has a problem with waking up after surgery due to anestesia, doctors have mentioned that its due to her brain abnormality her agenesis of the corpus callosum that her brain doesnt send the signal to wake up as fast so this is another scary part of it all also. She also will continue to have her spells (stops breathing and faints) after surgery due to anestesia they dont allow us to give Brianna anything other than tylenol ever so even after painful surgeries shes not allowed to have morphine or anything like it or she stops breathing... so she has to take the pain with only tylenol.

Thank you to all who take the time to read this and to pray for my little sweetie pie Brianna.

A very depressed mommy, araceli

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[matthewsmom]

Araceli, Angel & Hailey...

I said a prayer for Brianna before I even finished reading your prayer request. I am continuing to pray for Brianna and your family.

you wrote:

"Please pray that the surgery for her tonsil and adenoid removal will be enough to open her airways enough that she will not need a trach please..."

I will stand in agreement with you, Angel and Hailey and ask God to allow Brianna's surgery to open her airway so that she will breathe freely with no trach.

"Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them."

-Matthew 18:19-20

My heart goes out to you...there is so much going on and so many things to deal with. You ARE a strong Mommy....and it's ok for you to let it out and give it to God.

I will be praying for you and Angel...asking God to comfort you and give you guidance, wisdom and peace.

His hand is in all of this and He loves and watches over Brianna.

My prayer is for you to trust God and surrender your fears to Him. He will see you through this each and every step of the way. *hugs*

*continuing to send up prayers for your little sweetie pie*

Sandie

[aracelibriesmom]

Sandie,

Thank you very much for your prayers, thank you from the bottom of my heart.

It will be a couple of weeks until it is all scheduled and I am doing my best to schedule it around her birthday (sept 12) I want her at home and hospital free during her 2nd bday.

This " "Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them."

-Matthew 18:19-20 made me cry a lot... you are so great Sandie God is great for allowing me to have met you even if we are far away.

I cant thank you enough for praying for my little girl, I will keep you updated... as we go along our new journey.

You know Sandie what hurts the most is that we had not been so focused on her health lately because she had been doing well since her last hospitalization in May09, that we begun focusing on her development and she has been doing great from crawling to cruising furniture to using her push toy walker to learning to play with her cubes (she wouldnt get how to fit one into the other until just recently) that now we are being pushed back to focus on health and set back development again

Thanks for listening, thanks for praying.

HUGS,

Araceli

[hannahsmom]

I'll add your family to my prayer list, too. It's so hard to see our little ones going through such struggles.

[aracelibriesmom]

Thank you hannasmom

[matthewsmom]

Araceli,

You're welcome and please know that I am continuing to pray for Brianna and your family.

I am very thankful to God for allowing our paths to cross and to meet you. I hope to meet you in person one day. Being as the 2010 Conference will be held in Santa Clara, California...it would be wonderful if we both are able to attend.

I appreciate your mention of keeping me/us (on the forum) updated about Brianna. She is just so precious and sweet and no child should endure all that she has gone through. Most adults have not experienced anything close to what your sweet baby girl has gone through in the first two years of her life. Brianna is tough and strong...just like her Mommy.

Honestly, you have already gone through more than I did when Matthew was a baby and a little guy. I can relate to what you wrote about how much it hurts when you are finally able to focus on development, on rays of sunshine, on progress and you see and witness your baby doing
something for the first time that you were dreaming would happen but weren't sure it truly would only to have the rug pulled out from under your feet and the euphoric feeling snatched away and replaced with darkness.
I had times when I would be happy and smile again finally after having so much gloom but amidst the joy I had an underlying feeling of fearing or expecting something bad was just around the corner. It was awful.

When Matthew was little he had SO MANY doctor appointments, several surgeries and several seizures. The seizures were very scary and caused him to turn bluish on his lips, go pale greyish in color and he would barely breathe. I had to call 911, hold him in my arms, talk to him, listen to the 911 clerk, pray, feel frantic, pray, wonder when the ambulance would come...cuz it couldn't get there fast enough when you have a baby in your arms who is like a noodle and won't wake up for anything and is having breathing issues. To this day if Matthew so much as does anything unusual like lies over suddenly on his side as if sleeping on the floor in the middle of the day and is quiet...I jump and run to him YELLING out his name...wondering if something horrible happened and have flashbacks of how it was when he was a little guy.

You, however, have gone through a million times more than I.

It is definitely VERY hard to picture or focus on and think about the wonderful and positive accomplishments and things your child learned to do when those accomplishments and joys happen one minute in all their brilliant smiles and celebrating glory and (it feels like) the next minute the dooming cloud of darkness is robbing you and stamping out the joy.

Brianna has learned so many new things...try your best to hold on to those wonderful, positive pictures and know that she is a child of God and He knows her so well. He sees the bigger picture and we must trust Him in ALL things.

*hugs*

*continued prayers for Brianna*

Sandie

[acmunchkin]

I just saw your post. I will stand in absolute agreement with you, your family and your friends. We serve a big God! I am part of a group called the prayer web and it is basically hundreds of people that check the wall on Facebook or their e-mails and pray. Lots and lots of prayer warriors.....may I post this for them to lift up in prayer also? I didn't get through your post without tears because I understand where you are. Praying for your sweet family!

April

[aracelibriesmom]

Sandie,

You said:
I am very thankful to God for allowing our paths to cross and to meet you. I hope to meet you in person one day. Being as the 2010 Conference will be held in Santa Clara, California...it would be wonderful if we both are able to attend.

I thought it was going to be in Irvine California? Well either way I am in California so I am really hoping that we will both be able to attend and have our precious kids meet.

Also, regarding this part of your post:

When Matthew was little he had SO MANY doctor appointments, several surgeries and several seizures. The seizures were very scary and caused him to turn bluish on his lips, go pale greyish in color and he would barely breathe. I had to call 911, hold him in my arms, talk to him, listen to the 911 clerk, pray, feel frantic, pray, wonder when the ambulance would come...cuz it couldn't get there fast enough when you have a baby in your arms who is like a noodle and won't wake up for anything and is having breathing issues. To this day if Matthew so much as does anything unusual like lies over suddenly on his side as if sleeping on the floor in the middle of the day and is quiet...I jump and run to him YELLING out his name...wondering if something horrible happened and have flashbacks of how it was when he was a little guy.

I had no idea Matthew had gone through any surgeries, you had mentioned his seizure stuff with me before (febrile seizure?) If you dont mind telling me you can even PM me what surgeries did Matthew have?

When I was reading through the seizure causing Matthew to turn bluish greyish and having breathing problems as you were on the phone with 911 and the ambulance didnt seem to come fast enough... ... oh boy... can i relate...

There was one of the many times when Brianna stopped breathing (she suffers of these spells) turned purple almost black in the face and daddy couldnt make her come back, I called 911 screaming so scared... then i looked over at Brianna and she had fainted and wasnt breathing, I was yelling at the lady on the phone she would ask me to calm down I said "no you dont understand my baby is unconcious she is NOT breathing we cant get her to start breathing" then dad helped her to start breathing but her breathing was very shallow and she wasnt all there she had a blank stare then I heard the siren of the ambulance and i fell down on my knees praying it would arrive soon, as the lady said they should be there any minute Brianna stopped breathing again it must have been secods later the ambulance arrived since I heard it until then but it was forever to me. HUG HUG HUG

Thank you for all of your prayers Sandie, our God WILL hear us and he continues to hold Brianna's hand day by day.




April,

You have my permission to post my request for a prayer on the prayer wall of facebook. Just let me know how to access it so I can view and pray for others to return the favor done for my child and my family.

I have a facebook also, I use as a personal page you can find me under Araceli Sandoval.

Thank you for your prayers, God Bless you, HUG!


Araceli,

Hugs to all of our ACCAA family

[aracelibriesmom]

April,

I am in Orange County Califonia facebook fyi

[aracelibriesmom]

shocker!
Just got a call from CHOC Childrens Hospital, they have an opening tonight for Brianna's polysomnography (sleep study) TONIGHT?!?!?!?!?
I hate insurance companies why the heck couldnt they have called me early on today or yesterday. Either my husband or I have to spend the night at the hospital with her and I have a business trade show to do in Las Vegas NV tomorrow ( I live in Orange County CA!) I was planning on leaving around 6:30am the sleep study doesnt end until 8am or so. My husband does not drive... well all in all she needs to do it asap, so please keep my baby girl in your prayers and hope that this sleep study does not show segnificant change or signs of worsened apnea...

Thank you all for your prayers, I will continue to update you all.

God Bless.

Araceli, Brianna's mommy

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[aracelibriesmom]

by the way April what part of Orange County do you live in? I live in Anaheim

[matthewsmom]

Araceli...

Wow! Nothing like a spur of the moment phone call that turns your family life routine topsy turvy.

Brianna is in my prayers. I pray that the sleep study tonight will go very well, that God's hand will be in the entire process and that she will not have any worsening apnea.

I hope that everything will work out well for you with your own work plans.

I look forward to hearing your update.

Sandie
P.S. Brianna's pictures are adorable. She always has a big, beautiful smile on her face.

[ehart]

Araceli-

My prayers are with you and yours'.

-Erin

[aracelibriesmom]

Thank you Ladies, they ended up calling to say they couldnt get her in and that they will call me in 24-48hrs to reschedule ugh! It turned out good since I left for Vegas the next morning and came back past midnight the trade show went well and I am to tired to go through it all... I hope when they reschedule they will at least give me a day or two's notice in advance.

I will hold on to these precious prayers for that day, again thank you.