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Post by lauras on Jul 14, 2009 22:38:27 GMT -5
For the adult ACCers out there, Were you delayed in puberty also? My Daughter is 14, and I was just wondering if ACC affected
puberty.
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Post by Lynnea on Jul 14, 2009 23:45:41 GMT -5
Hey! As for all ACCers I'm not sure if a delay in puberty is caused by ACC or not. I'm sure there is a possibility in this. On a personal level I had a slight delay Started reaching the stages of puberty at age 14 or 15. Hopefully we'll get answers from our other Adult ACCers on here, and I'm also hoping to see more adult ACCers on this board soon.
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Post by matthewsmom on Jul 15, 2009 1:28:44 GMT -5
laura,
I am not an adult with ACC and I hope that the adults won't mind that I am replying to this post.
When my child, Matthew, who has complete ACC was very little I was told by one of his doctors that puberty can sometimes be affected due to the corpus callosum being missing. It was explained to me that because the corpus callosum is midline in the brain and it sits very close to where the pituitary is there is a chance that the pituitary may also have a problem. The pituitary is what controls the hormones and begins the onset of puberty. A child's growth can sometimes also be affected as a result of having ACC. Some kids with ACC actually need to go on growth hormone to help them grow.
Matthew's pediatric endocrinologist sees Matthew on a yearly basis to be sure that his hormones are functioning normally and to be sure that he entered into puberty at a normal time. She explained to me that sometimes kids who have ACC may enter into puberty way too early and that if that happens puberty will need to be delayed. She also said that some kids with ACC can enter puberty late and some may not enter puberty at all and if a child who has ACC doesn't enter into puberty then a pediatric endocrinologist would be able to give them the hormones necessary to help puberty begin.
Matthew began entering into puberty somewhere around 14 years old but it wasn't until about 15 that he was really in puberty. At his last endocrinologist appointment his doctor checked all of his hormone levels and they were right where they should be.
I asked her if some kids who have ACC might start to enter puberty and then it slows down or stops without fully entering puberty. She told me that is also a possibility but that in Matthew's case he is doing very well and she doesn't see that happening in his case.
So, yes....ACC and the corpus callosum being missing has the possiblity of causing problems with puberty but doesn't mean that it will happen. Matthew has been doing just fine with puberty and it started without any medical intervention.
Sandie *Mom to 15 year old Matthew with complete ACC*
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Post by lauras on Jul 15, 2009 15:32:27 GMT -5
Sandie where do you hide your wings. you are such an angel Thank you for all the information.
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Post by matthewsmom on Jul 15, 2009 17:29:40 GMT -5
Laura, That was such a sweet thing to say. Thank you very much for your kind words. I am so glad that the information was helpful and I am happy to help.  If you would like to discuss anything about puberty more please feel free to e-mail me. I know that the subject of puberty and the delicate issues surrounding it are not always easy to discuss openly in a forum.  hope@aracnet.com Sandie *Mom to 15 year old Matthew with complete ACC* |
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Post by Lynnea on Jul 15, 2009 20:26:37 GMT -5
Sandie you really are a blessing to me and so many others, especially to this board. I'm so thankful for every member of this board, and the knowledge we gane from each other. |
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Post by matthewsmom on Jul 16, 2009 2:11:00 GMT -5
Lynnea, Thank you very much for your nice comment. I am so thankful to have such a wonderful message board (thanks to you)  and to have met such nice people who are a part of this message board. It is a blessing. I look forward to reading each new post everytime someone leaves a new comment. God Bless you, Lynnea Sandie *Mom to 15 year old Matthew with complete ACC* |
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Post by lauras on Jul 17, 2009 17:14:36 GMT -5
Sandie I may be emailing you. It is a personal, sensitive topic that I was a little reluctant to post up. Thank you.
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Post by matthewsmom on Jul 19, 2009 13:10:08 GMT -5
Laura,
I would be happy to e-mail with you.
I understand completely how sensitive the topic of puberty is and how posting in open forums on such matters is uncomfortable.
Sandie *Mom to 15 year old Matthew with complete ACC*
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macs
Newbie
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Post by macs on Jun 8, 2011 13:15:13 GMT -5
Hmm... this is a great question... It didn't apply to my though... I was REALLY EARLY! The only significant part was my height (I was expected to grow to 5'8" but didn't go past 5'2.5" which they attributed to Genetics anyway!
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and to have met such nice people who are a part of this message board. It is a blessing. I look forward to reading each new post everytime someone leaves a new comment.